Quick Resource Guide for New Ostomates
A link to download a PDF of this guide can be found at the end of this post
1. American Cancer Society: www.cancer.org; 1-800-227-2345
2. Crohn’s & Colitis Foundation of America: www.ccfa.org; 1-800-932-2423
3. Middlesex MD: www.middlesexmd.com; female sexual health website and store
4. United Ostomy Association of America: www.ostomy.org; 1-800-826-0826
5. Diet & Nutrition: https://www.ostomy.org/diet-nutrition/
6. Intimacy: https://www.ostomy.org/intimacy-after-ostomy-surgery/
7. WOCN Peristomal Skin Assessment Guide: https://psag-consumer.wocn.org/#use-guideline
8. Blogs:
• The Stolen Colon (www.stolencolon.com).
• Vegan Ostomy (www.veganostomy.ca).
• Uncover Ostomy (www.uncoverostomy.org).
9. YouTube (as recommended by our readers):
10. Facebook (there are a large number of self-help support groups. Make sure the groups are “private” if you don’t want your comments on posts to appear in your friends’ feeds.
11. Forums at United Ostomy Association of America www.uoaa.org/forum/index.php
12. Find a support group near you: www.ostomy.org/support-group-finder/
13. Online discussion boards: www.uoaa.org/forum/index.php
1. Hollister - www.hollister.com 1-800-323-4060(Secure Start program)
2. Convatec - www.convatec.com 1-800-422-8811 (ConvatecMe+ with telehealth option)
3. Coloplast - www.coloplast.com 1-800-533-0464 (Coloplast Care program with app option)
4. NuHope - www.Nu-Hope.com 1-800-899-5017
5. Marlen - www.marlenmfg.com 1-216-292-7060
6. CyMed Ostomy- www.cymedostomy.com 1-800-582-0707
Please contact the following companies.
1. Ostostore. www.Ostostore.com
2. Ostogroup: www.ostogroup.org ; 1-877-678-6690
3. Hollister Program:1-800-323-4060
4. Convatec Access Program: 1-800-422-8811
5. Coloplast Patient Assistance Program: 1-877-781-2656
6. Kindred Box: www.kindredbox.org
7. The Pouch Place: www.pouchplace.com/; 866-531-1285
1. Byram Healthcare * (877-90-BYRAM) * website: Byram Healthcare
2. Better Health Supplies * (844-260-0720) * website: Better Health Supplies
3. EdgePark * 800-321-0591 * website: EdgePark
4. If you have a supplier you like, please let us know in the comments section below..
1. Ostomy Secrets- www.ostomysecrets.com 1-877-613-6246
2. White Rose Collection- www.whiterosecollection.com (UK-based; ship to US)
3. Stealth Belts- www.stealthbelt.com 1-800-237-4491
4. NuHope Ostomy Support Belts-www.Nu-hope.com/beltlit.pdf or 800-899-5017
5. Celebration Ostomy Support belt- https://celebrationostomysupportbelt.com/ or 413 539-7704
6. Swim apparel/undergarments- https://prismhealthservices.net/conniusa or 413 539-7704
7. Stomaguard: www.stomaplex.com 570-560-1016
8. Stoma shield: www.stomagear.com 800-681-1584
9. Stoma support: www.ostomyarmor.com 719-689-0203
“Boy Shorts underwear: They are…comfortable, and the pouch lays flat, and the stool is distributed throughout the pouch instead of collecting at the bottom of the pouch.”
“Camisoles or Trendy Top: are perfect to wear with low-cut jeans or fitted outfits. The pouch will stay in place. (No more pooching out at the perfect).”
“Consider buying maternity pants (or bellybands).”
“If you have a stoma above the waistline, supportive wraps by Ostomy Secrets will help distribute and smooth the contents of your pouch and conceal pouch. They are also great to wear for romantic moments."
1. Be Free Odor Elimination System: www.befreetechnologies.com or (855) 914-4926. 2. Hollister M-9 drops. 3. Deveron pills. 4. Over-the-counter options: Insert mouthwash or mints (ex.,Tic Tacs™ Altoids™)into the pouch. 5. Never insert products into the stoma.
